Data sharing

13:35 - 14:10

Wednesday 12 May

Data ethics: beyond compliance

In this session, Sue will present a short overview of the relevant legal and policy landscape on data storage sharing and use, and some tips on where to start with good ethical foundations. They'll also be time for discussion and questions. Sue is a Research Fellow at the Open Data Institute specialising in digital ethics, with a background in property and her research explores how emerging technologies disrupt established regulatory norms.

12:15 - 12:40

Tuesday 11 May

British Red Cross on Open source: why it matters in the social sector

What is open source and why it is important in the social sector? Mike will demonstrate British Red Cross’s adoption of a suite of open source tools, which analyse and publish data in the public domain under open source licenses. He’ll show the benefits this brought to the charity, including helping to secure grants and receive analytical contributions - and to the broader community, such as improving access to data, insights, and resources. You'll take away pragmatic steps to adopt an open source model in an organisation while addressing common barriers such as personal data and security concerns. Open source tools and dashboards including the Vulnerability Index and Resilience Index will be explored.

10:35 - 11:30

Monday 10 May

Secure Anonymised Information Linkage Databank (SAIL) ‘public data, for public good’

Containing billions of person-based records, from the last quarter of a century or more, SAIL Databank is a rich and trusted population data resource based within Swansea University Medical School whose influence stretches globally. SAIL Databank is accredited to the highest international standards and exists to improve lives by providing researchers with secure, linkable and anonymised data that can be accessed and analysed from anywhere in the world – public data, for public good.

 

Recently voted in DataIQ’s 100 most influential people in data, Professor David Ford will speak about the pioneering work that he others undertook to establish a privacy-protecting repository for de-identified population data that could be unlocked for society’s benefit. Professor Ford’s presentation will cover the vast array of different data types entrusted to SAIL Databank since those early beginnings, including health, housing, education and other administrative data, and underline the strict governance processes that keeps the data secure but also helps to facilitate and support world-changing research.